Relying on dialysis is more than just a medical treatment
As someone who has personally experienced the challenges of living with kidney disease, which has developed into end stage renal disease (ESRD) and now relies on dialysis to survive, I truly understand the importance of raising awareness, especially in the Black African Caribbean communities. This is why I founded the African Caribbean Kidney Education Enterprise (ACKEE).
Recently, I was interviewed by Tony Fuel for his excellent House Music Connections Podcast (you may not know that I have been a DJ for 25 years!). We covered a lot of ground, including living with kidney failure, what it really means to rely on dialysis, faith, working in the music industry, and transitioning to founding ACKEE.
Relying on dialysis is more than just a medical treatment; it affects every aspect of life. From the physical demands to the emotional and psychological impacts, and event how much it eats into your time, the journey is filled with both challenges and triumphs. During the interview, I shared some of these experiences and how I make it best work for me.
I believe that it is so important to share your stories so others can learn from your experiences, be encouraged and inspired, and also for history and legacy purposes. Sharing stories is powerful. It creates connections, fosters understanding, and can be a source of strength for those facing similar challenges.
What stories do you have to share with ACKEE? Have you or a loved one experienced living with kidney disease? We would love to hear from you! Your experiences could help someone else find hope and inspiration.
Please share your thoughts and stories in the comments below. Together, we can build a supportive community and raise awareness about the realities of living with kidney disease.
Watch the full interview on YouTube or listen wherever you get your podcasts.
How can you help?
Consider becoming a deceased kidney donor
Share your decision with your family
Share this blog and the work of the African Caribbean Kidney Education Enterprise™ (ACKEE) to help inform and educate others. Also find us on social media @wearetheackee
Do you have ideas on how we can promote deceased kidney donation within the Black African Caribbean community? We welcome collaboration and partnership suggestions. Reach out to us via our contact page if you believe we can work together.
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